Trying to stay afloat on a sea of medication. Living as best I can around my Cystic Fibrosis.
Monday, October 30, 2006
More Xquisitness
In between other projects I have been making lots of Christmas cards on my super amazing sewing machine. These are mostly for my Mum and Aunts but if anyone wants some then just drop me a line and I can do some for a very reasonable price!
Labels:
Embroidery
Thursday, October 26, 2006
Bizarre Drugs!
I like to think that I have become something of a connoisseur of pills and capsules in their various forms, and I have over the last 26 years taken a quite phenomenal number (I think I've averaged about 40 pills a day since I was three.... that's a lot of pills). But never in my experience have I come across such a hilarious drug as the new one I was prescribed on Wednesday at Papworth. I mean look at it! Have you ever seen such a revolting colour scheme, they practically glow in the dark! Most of my pills are either brown, dark blue or non descript beige- these look radioactive....
I've been feeling pretty rotten recently, and one of the lovely bugs that I have been growing in my lungs is a fungus called Aspergilis. Everyone inhales this all the time as its in the atmosphere, but in people with CF it can sometimes cause problems. So as I'm taking medication for all the other bugs they figured why not try and get rid of this one too, and that might make me feel better. I am now taking this monstrous looking pill twice a day, its technical name is Itraconazole, but just to add insult to injury its commercial name is Sporanox! I'll be lucky if I manage to take any cos I can barely swallow them for all the laughing!
I've been feeling pretty rotten recently, and one of the lovely bugs that I have been growing in my lungs is a fungus called Aspergilis. Everyone inhales this all the time as its in the atmosphere, but in people with CF it can sometimes cause problems. So as I'm taking medication for all the other bugs they figured why not try and get rid of this one too, and that might make me feel better. I am now taking this monstrous looking pill twice a day, its technical name is Itraconazole, but just to add insult to injury its commercial name is Sporanox! I'll be lucky if I manage to take any cos I can barely swallow them for all the laughing!
Thursday, October 19, 2006
Leggings, leggings everywhere!
Today I went to London to look for some fabric for Neil's suit, and everywhere I looked women were wearing leggings. Not just teens but women like me, old enough to remember leggings from the eighties i.e. should know better! Some accesorised these revolting things with dresses, some with big jumpers, most with ankle boots. What I want to know is-Why? Have we learnt nothing? Is it just 'cos Sienna Miller was seen wearing them? (and what is with those boots?)
They really are a strange garment when you think about it; not quite tights, stockings, or socks. They have a vague affinity with trousers but only just as the cropped ones just leave large patches of bare shin. Its just so unflattering! Their whole point is to draw attention to legs, so anyone with chunky ankles, knobbly knees or wobbly thighs look out! Even if you have lovely legs there is something undeniably silly about wearing leggings, especially with ankle boots so you get that little ring of exposed leg. Isn't that cold?? And don't even get me started on the lovely pair of leotard print ankle warmers with leggings and ankle boots that I had to endure on the tube..... Unless you are a professional dancer there is no excuse! We clearly learnt nothing from the eighties when this horrible garment was last prevelent. Please girls resist the temptation!
They really are a strange garment when you think about it; not quite tights, stockings, or socks. They have a vague affinity with trousers but only just as the cropped ones just leave large patches of bare shin. Its just so unflattering! Their whole point is to draw attention to legs, so anyone with chunky ankles, knobbly knees or wobbly thighs look out! Even if you have lovely legs there is something undeniably silly about wearing leggings, especially with ankle boots so you get that little ring of exposed leg. Isn't that cold?? And don't even get me started on the lovely pair of leotard print ankle warmers with leggings and ankle boots that I had to endure on the tube..... Unless you are a professional dancer there is no excuse! We clearly learnt nothing from the eighties when this horrible garment was last prevelent. Please girls resist the temptation!
Thursday, October 12, 2006
Live life, then give life.
Two posts in one day- this must be important. And actually it is, the two girls Emma and Emily, who set up the Live Life then give Life campaign are both regulars on the CF Trust message boards, and tonight they put this link up
http://www.onetruemedia.com/shared?p=130f05db50d4d4dbeb8f49&skin_id=0&utm_source=otm&utm_medium=text_url
Please, please, please, take a look and think about joining the Organ Donation register, I'm on it although they probably want some of my organs! Emily is on the transplant list already as are many other people with CF, one day I'll be on there too for a double lung transplant. Its a scary thought, but it is truly amazing what they can do these days, and by joining the register you could give someone the chance at life. For more info go to the campaign site
http://www.livelifethengivelife.co.uk/
http://www.onetruemedia.com/shared?p=130f05db50d4d4dbeb8f49&skin_id=0&utm_source=otm&utm_medium=text_url
Please, please, please, take a look and think about joining the Organ Donation register, I'm on it although they probably want some of my organs! Emily is on the transplant list already as are many other people with CF, one day I'll be on there too for a double lung transplant. Its a scary thought, but it is truly amazing what they can do these days, and by joining the register you could give someone the chance at life. For more info go to the campaign site
http://www.livelifethengivelife.co.uk/
Thoughts for the day....
1) Good health is merely the slowest possible rate at which one can die.
2) Give a person a fish and you feed them for a day; Teach a person to use the Internet and they won't bother you for weeks.
3) Some people are like a Slinky... not really good for anything, but you still can't help but smile when you shove them down the stairs.
4) Health freaks are going to feel stupid someday, lying in hospitals dying of nothing.
5) All of us could take a lesson from the weather. It pays no attention to criticism.
6) Why does a slight tax increase cost you 50 quid and a substantial tax cut saves you 50p?
7) In the 60s, people took LSD to make the world weird. Now the World is weird and people take Prozac to make it normal.
8) We know exactly where any untaxed car is located among the millions of cars in Britain. But we haven't got a clue as to where thousands of illegal immigrants and terrorists are located. Maybe we should put the DVLA in charge of immigration.
(Before anyone comments that I am being evil and mean, these are not serious-its a joke!)
2) Give a person a fish and you feed them for a day; Teach a person to use the Internet and they won't bother you for weeks.
3) Some people are like a Slinky... not really good for anything, but you still can't help but smile when you shove them down the stairs.
4) Health freaks are going to feel stupid someday, lying in hospitals dying of nothing.
5) All of us could take a lesson from the weather. It pays no attention to criticism.
6) Why does a slight tax increase cost you 50 quid and a substantial tax cut saves you 50p?
7) In the 60s, people took LSD to make the world weird. Now the World is weird and people take Prozac to make it normal.
8) We know exactly where any untaxed car is located among the millions of cars in Britain. But we haven't got a clue as to where thousands of illegal immigrants and terrorists are located. Maybe we should put the DVLA in charge of immigration.
(Before anyone comments that I am being evil and mean, these are not serious-its a joke!)
Subscribe to:
Posts (Atom)